Alec shared how growing up with his younger brother, Conor, has shaped his perspective on life and also his career aspirations.

Jannine Scott shared about her own experience with DYNC1H1 and how it has affected her two daughters with inherited DYNC1H1.

I shared the post below on my LinkedIn after making the decision to step away from my career. Having a child diagnosed with DYNC1H1 and other related comorbidities has been difficult, and this decision was not made lightly. I hope that by sharing my story, I can help other families feel less alone.